Breastfeeding a child with food allergies can be difficult, even if it is going well. There are solutions available to the majority of common breastfeeding problems. Reach out if you need help and check out the resources below!
Many Parents have found it useful to keep careful notes on what their child is eating in order to identify possible triggers, and also to help their medical team assess whether their child is meeting their nutritional needs.
Children who have FPIES or allergy to both milk and soy may require a special formula that is partially or fully broken down into its basic components. If your child’s doctor has prescribed a medically necessary formula, you may be able to obtain insurance coverage. This varies by state, so check the laws in your area below. Some parents also get help through their local WIC office.
Along with your child’s medical team, when you child is on a specialized formula, another resource is the Dietitians on hand to help with questions you may have about introducing formula, mixing instructions, dilution charts, recipes and other helpful tips when transitioning formulas (whether from one formula to another or from breast milk to formula) such as increasing the calories per ounce slowly. Always consult with your child’s medical team before making any changes to your child’s formula.
- Resources from Nutricia: Neocate
- Amino acid based formulas, may be an option for children with FPIES.
Some children who are unable to take in enough calories or protein by mouth may require temporary or permanent placement of a feeding tube. Most children will continue to receive at least some of their nutrition by mouth, and even “permanent” g-tubes are removed once the child is able to meet his/ her nutritional needs by mouth. Although this can be a difficult decision to make, it can make an incredible difference in your child’s well-being.
Cooking, Recipes and Products
Parents of children diagnosed with FPIES may find that they need to be pretty creative in the kitchen, with meals and snacks! Though overwhelming at times, there are many tips and tricks for substituting ingredients and making foods more appealing.
Some children develop aversions to certain foods or textures, or may even begin to refuse all foods. There are many things to do to avoid or treat this aversion. Some children also need therapy to treat a swallowing problem. Ask your child’s doctor whether you need a referral to a feeding team to help you. These teams often have occupational therapists, speech therapists, and registered dietitians.