This year, in honor of Rare Disease Day, a family in the FPIES community hosted an awareness event for FPIES. We, at the Foundation, found the event very encouraging and asked them to share their story… Chase’s FPIES Challenge started Read more…
An interview with co-authors of the newly released book “Sense-ational Mealtimes” Denise Stapleton, PhD, Accredited Practicing Dietitian & Gillian Griffiths, Occupational Therapist.** Mealtime should be enjoyable, yet some children struggle,and their families struggle. Mealtimes for some families are fraught with ongoing grimacing, gagging, Read more…
FPIES Foundation joining forces with Rare Diseases Community and Global Genes 350-million voices to make a difference ‘You are not alone.’ It’s a mantra of sorts here at the FPIES Foundation. You are not alone on food trials, you are not Read more…
Every year, we participate with the Rare community to celebrate Rare Disease Day! This annual global event on the last day of February aims to, “raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives”. (What is Read more…
In October, The FPIES Foundation was honored to attend the Annual North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) meeting. NASPGHAN brings pediatric training and advancements to this yearly conference. We had the privilege of meeting and speaking Read more…
From the moment The FPIES Foundation announced the day in August to the official proclamation released on Global FPIES Day itself, the FPIES community has been making a great impact for the first Global FPIES Day! Immediately, our community set Read more…
The FPIES Foundation has participated in several food allergy awareness events this fall! On September 13th The FPIES Foundation was once again honored to provide families with FPIES information on at Boston Zoo on a day for families living with Food Read more…
Last year we shared some of our favorite tips for keeping your children safe, and included, during the Halloween festivities in our Allergy Friendly Halloween post. Be sure to check it out! This year, many families are participating in the Teal Pumpkin Project, Read more…
Today, on Global FPIES Day, at The FPIES Foundation, we are proud announce the official proclamation for the day. The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower Read more…
The FPIES Foundation invites everyone to participate in the first official celebration year of Global FPIES Day on October 14th! FPIES (Food Protein-Induced Enterocolitis Syndrome) is a rare type of food allergy and the need for awareness, education and support Read more…