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Living with FPIES

Helping families

Why We Need to Stop Referring to IgE-Mediated Allergies as ‘True’ Food Allergies

This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic reactions commonly seen in the media are IgE reactions — Read more…

By thefpiesfoundation, 1 yearMay 4, 2021 ago
Living with FPIES

Rare Disease Day 2021

Do you ever wish you had more opportunities for raising awareness about FPIES? Are you ever unsure of where to get started with raising awareness? The last day of February each year is “Rare Diseases Day;” this awareness day sponsored by NORD (the National Organization for Rare Disorders) is a Read more…

By thefpiesfoundation, 1 yearFebruary 16, 2021 ago
FPIES Registry

FPIES and the Microbiome – Newest Survey on The Global FPIES Patient Registry!

With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient survey, “FPIES and the Microbiome.” This survey seeks to learn Read more…

By thefpiesfoundation, 1 yearDecember 29, 2020 ago
Living with FPIES

Holiday Baking: Family Traditions & FPIES

The temperature is changing, school breaks are coming, and its back to planning for those special holidays again! This year, things certainly may look a bit different, as many of us are opting to stick around the house and celebrate within our own walls, hoping to avoid exposure to COVID-19. Read more…

By thefpiesfoundation, 2 yearsDecember 14, 2020 ago
Living with FPIES

Tips for Keeping Safe at Home

A FARE Collaborator blog When a family member is diagnosed with food allergies, life at home becomes somewhat more challenging. By changing the way you shop, cook and clean, you can enjoy meals that are safe for everyone. Stocking Your Kitchen Learn how to read food labels and make sure Read more…

By thefpiesfoundation, 2 yearsDecember 6, 2020 ago
Helping families

Global Day Meet the Presenters: Dr. Sergio Negre Policarpo

Global FPIES Day is always a great time to educate ourselves further about the various aspects of living with FPIES, and Global FPIES Day 2020 was no exception! We hosted a great group of presenters who offered some fascinating insights for us all. Over the next few months, we will Read more…

By thefpiesfoundation, 2 yearsNovember 30, 2020 ago
Living with FPIES

Allies for FPIES – Global FPIES Day 2020 Success!

Global FPIES Day is honored on Oct. 14th every year. Established in 2014, this day is set by The FPIES Foundation to recognize Food Protein-Induced Enterocolitis Syndrome (FPIES) while empowering those living with the diagnosis by providing tools, support, and resources for every day.  It is also a day when Read more…

By thefpiesfoundation, 2 yearsOctober 29, 2020 ago
Helping families

No Day at the Beach: A Doc Mom’s FPIES Journey

A guest post by Laura Benjamin, MD. No one expects to find themselves in the back of an ambulance with their six month old baby during a relaxing Florida vacation, but that’s exactly where I ended up. My husband and I, both doctors, and three other couples, all also doctors, Read more…

By thefpiesfoundation, 2 yearsJuly 1, 2020 ago
Living with FPIES

Food Allergy Awareness Week 2020

Food Allergy Awareness Week (FAAW) is May 10-16 this year.  Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).

By thefpiesfoundation, 2 yearsMay 7, 2020 ago
Living with FPIES

Allergy Hospitality

Because we like to bring our community resources that may be helpful to them for the everyday, we sat down with Margaret Schmitt who is the creator/writer of “Allergy Hospitality”, an allergen friendly cookbook.   This cookbook isn’t just for those living with food allergies but also for the friends and Read more…

By thefpiesfoundation, 3 yearsNovember 27, 2019 ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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