Dear Family and Friends, Thank you for taking the first step and trying to learn more about what life is like for our little one with FPIES and for us as a family. We do understand that sometimes you might not know what to say or do, and that you Read more…
Dear Family and Friends, Thank you for taking the first step and trying to learn more about what life is like for our little one with FPIES and for us as a family. We do understand that sometimes you might not know what to say or do, and that you Read more…
“In the U.S., a rare disease is one that affects fewer than 200,000 people. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease.” from: Rare Disease Day 2012 How are Families Affected Read more…
