Our children are the cornerstone of The Foundation. We strive everyday to educate, advocate and empower the families and medical professionals who support them The FPIES Foundation is excited to have recently launched the ‘Kids Spot.’ The ‘Kids Spot’ is designed with young children and their siblings in mind. It’s a Read more…
With the help of this caring community of families living with Food Protein Induced Enterocolitis Syndrome, we have developed a set of new awareness cards for families living with FPIES, inspired by families. The business card-sized awareness cards are great for providing simple explanations of FPIES for friends, family, babysitters and Read more…
October brings Fall, Harvest Activities and Halloween! We have compiled a list of idea’s some parents of children living with FPIES like to celebrate a safe and allergy friendly Halloween. Pre-assembled treat bags! Make your own treat bags (safe candy or non-food treats) and pass out these pre-assembled treat bags to your neighbors ahead Read more…
Cooking with FPIES in mind can be quite an adventure! When using substitutions and often uncommon ingredients, there can be a steep learning curve involved in figuring out how to turn safe ingredients into a variety of interesting dishes and baked goods. Fear not! Head over to the Cooking and Nutrition section Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…
Your little one has been diagnosed with FPIES (or other food allergies), their birthday is approaching and you don’t have enough safe ingredients to make a cake. What can you do? There are so many fun options!! We wanted to share a few of the ideas that parents have done to help Read more…
Dear Family and Friends, Thank you for taking the first step and trying to learn more about what life is like for our little one with FPIES and for us as a family. We do understand that sometimes you might not know what to say or do, and that you Read more…
Dear Family and Friends, Thank you for taking the first step and trying to learn more about what life is like for our little one with FPIES and for us as a family. We do understand that sometimes you might not know what to say or do, and that you Read more…
“In the U.S., a rare disease is one that affects fewer than 200,000 people. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease.” from: Rare Disease Day 2012 How are Families Affected Read more…
