Food Allergy Awareness Week (FAAW) is May 10-16 this year. Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).
Because we like to bring our community resources that may be helpful to them for the everyday, we sat down with Margaret Schmitt who is the creator/writer of “Allergy Hospitality”, an allergen friendly cookbook. This cookbook isn’t just for those living with food allergies but also for the friends and Read more…
Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…
This post is inspired by an FPIES article appearing on The Mighty “What I’ve learned as a mother of a child with FPIES”. At the end of the article, the author mentions her ability to know the cross contamination of common grocery store items. When we shared this article from Read more…
Halloween is one of my favorite days of the year. I love holidays in general, and even though Christmas will always have a special place in my heart, there are some pretty big expectations wrapped up (pun intended) around December 25. Big extended-family get-togethers, possibly involving travel, a fancy dinner Read more…
One of the things that I find I struggle with as an FPIES mom is making food fun for my kids. My youngest can eat very few packaged foods, and so anything fun he gets has to come from me. I try to find things both he and my oldest Read more…
Contains: FIVE ingredients: millet, water, safflower oil, pure maple syrup, and mini-chocolate chips. Does NOT contain: egg, baking soda, baking powder. Inspired by a recipe from a fellow FPIES mom (and her blog), and her recipe for Merry Muffins, I learned to create several baked treats from just this ONE recipe! I took the Read more…
The FPIES Foundation is excited that the Centers for Disease Control (CDC) now recognizes Food Protein-Induced Enterocolitis Syndrome (FPIES), and has appointed it with diagnostic code K52.21, among allergic digestive diseases. This is a step that has the building blocks to make diagnosis and medical/formula coverage easier for a lot of children Read more…
Whether you are nursing, starting solid foods with your child, or simply looking for a way to learn more about your child’s responses to foods in his/her diet, a food journal can be a helpful tool in figuring out safe vs. unsafe foods for your little one. When their little ones initially Read more…
Someone’s In the Kitchen with FPIES I have always loved being in the kitchen and even though my eldest daughter’s FPIES diagnosis threw me for a loop, it didn’t change that love. Creating new recipes for her and her little sister, also diagnosed with FPIES, has become a way of Read more…