We always thought there had to be something going on with Brynn, as she would have these random hours where she would just scream. I talked to our pediatrician and was told she was just a colicky baby. I was nursing while at home and pumping/freezing while I was at […]
Ellie was ‘colicky’ from birth. We were sent home from the hospital with the instructions that she is ‘just one of those babies that refluxes’ and to ‘be sure and lay her on her side’ so that she does not ‘choke or aspirate on her own vomit’. More than half […]
Carter was born in May of 2009. He was born at 35 weeks, which classified him as “near term”. I was on modified bed rest for over a month due to early contractions. His labor was pretty uneventful. After he was born, we were able to give him hugs and […]
Matthew was six months old when he had his first FPIES reaction. He was exclusively breast fed until he hit six months, so we had no idea that anything could be wrong. His poop always had an odd smell – a “buttered popcorn” instead of the “yeast bread” smell that his big sister’s diapers […]
“Never doubt that a small group of thoughtful, concerned citizens can change world.Indeed it is the only thing that ever has”. —Margaret Mead The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. FPIES […]
Inspiring Families This page is dedicated to sharing stories of the journey of our FPIES families. Sharing both our trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well. This is a unique opportunity for families […]
FPIES Q&A Diagnosis and Testing What can I expect at the first Allergist and/ or Gastroenterologist appointment? Be prepared to be asked many questions from your specialist. Your answers to those questions are essential because the diagnosis of FPIES is what is called a ‘clinical diagnosis’. This term, ‘a clinical […]
FPIES Q&A Treatment and Management What are the goals of long-term management of FPIES? 1. To maintain proper nutrition 2. To obtain “safe” foods 3. To be ready to treat an accidental exposure that results in a reaction 4. To be monitored for possible resolution of the allergy with a […]
Front Page Home https://fpiesfoundation.org/ Contact us https://fpiesfoundation.org/contact/ Newsletter sign up https://lp.constantcontactpages.com/su/r3bYeqU Donate Today Quick Links Emergency Care https://fpiesfoundation.org/emergency-care/ Toolbox https://fpiesfoundation.org/resources/ FPIES Learning Library https://fpiesfoundation.org/advocacy/online-learning/ Global FPIES Registry https://connect.invitae.com/en/org/fpies Providers https://fpiesfoundation.org/for-healthcare/ Connect https://fpiesfoundation.org/inspiration-and-support/ For Kids https://fpiesfoundation.org/a-foundation-for-kids/ School Smart https://fpiesfoundation.org/school-support-for-kids/ Global FPIES Day https://fpiesfoundation.org/global-fpies-day/ What is FPIES? https://fpiesfoundation.org/about-fpies-3/ Ways to Support The […]
About Food Protein-Induced Enterocolitis Syndrome Written in collaboration by: The FPIES Foundation Board of Directors and Medical Advisory Board Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in […]