About Us: Our Founders

“Never doubt that a small group of thoughtful, concerned citizens can change world.Indeed it is the only thing that ever has”. —Margaret Mead The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. FPIES […]

Inspiring Families This page is dedicated to sharing stories of the journey of our FPIES families. Sharing both our trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well. This is a unique opportunity for families […]

Diagnosis and Testing

FPIES Q&A Diagnosis and Testing What can I expect at the first Allergist and/ or Gastroenterologist appointment? Be prepared to be asked many questions from your specialist. Your answers to those questions are essential because the diagnosis of FPIES is what is called a ‘clinical diagnosis’. This term, ‘a clinical […]

Treatment and Management

FPIES Q&A Treatment and Managment What are the goals of long term management of FPIES? 1. To maintain proper nutrition 2. To obtain “safe” foods 3. To be ready to treat an accidental exposure that results in a reaction 4. To be monitored for possible resolution of the allergy with […]

About Us: Site Map

Home page Home FPIES Patient Registry by Crossroads Connect with us: FaceBook Blog Pinterest  YouTube Twitter Email About the Diagnosis: About FPIES FPIES At-a-Glance (PDF) FPIES Dictionary FPIES Medical Literature FPIES Q&A from the MAB About FPIES: FPIES Q&A: What is FPIES?  About FPIES: FPIES Q&A: Common Symptoms  About FPIES: FPIES Q&A: Common Triggers […]

What is FPIES?

  About Food Protein-Induced Enterocolitis Syndrome Written in collaboration by: The FPIES Foundation Board of Directors and Medical Advisory Board Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract.  Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in […]

Healthcare Professionals

Raise Your Voice! Show Support for Better Medical Nutrition Coverage The Medical Nutrition Equity Act is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, […]

Your Family’s Home for FPIES Tools & Resources FPIES 101: Get the Basics Get started learning about FPIES by reviewing “About FPIES,” the Q&A featuring our esteemed Medical Advisory Board, and our Emergency Care resources, in which you can learn more about FPIES and shock. Visiting Hospitals & Clinics A […]