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Educate

Helping families

COVID Conversations– Through an FPIES Lens: Food Labels.

From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…

By thefpiesfoundation, 8 months8 months ago
Helping families

FPIES Workbook for Parents and Caregivers: An Interview

This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!

By thefpiesfoundation, 1 year1 year ago
Helping families

Make Like A Zebra and #ShowYourStripes

Make Like A Zebra and #ShowYourStripes Every year, my daughters and I look forward to Rare Diseases Day. It is such a great opportunity to raise awareness, but I feel like it also is a wonderful reminder to them that they are not alone– there are kids all over the Read more…

By thefpiesfoundation, 2 years2 years ago
Helping families

FPIES: This is How We Do It

As we celebrate our seventh anniversary at The FPIES Foundation, I have been looking back over the years since our beginnings and since the start of my own family’s FPIES journey. I smile as I remember families that have come and gone from our community. Even though they may have Read more…

By thefpiesfoundation, 2 years2 years ago
Helping families

Paying Medical Bills as Simply as Possible

Paying Medical Bills as Simply as Possible By Margaret Hancock For those navigating FPIES – or any rare disease – hospital, specialist, nutritional, and additional medical bills can be quite confusing and time-consuming. I am grateful for a brief stint that I had with an insurance firm as I learned through Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

Preparing for a Food Challenge

When navigating through the FPIES reality, one of the more regular activities is a food challenge. When we began introducing foods to our son, several challenges resulted in days worth of medical attention. Now, each and every food introduction we do (whether the food is a typical FPIES trigger or Read more…

By thefpiesfoundation, 3 years3 years ago
In The News

Global FPIES Day 2017: Steps4FPIES

We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

Talking with Children about Allergies: A Guest Post

This post originally appeared on Hots & Olives, Joyful Living with Allergies and is being shared here today by author Margaret Hancock, food allergy and mom to a child with FPIES. It was kids night at the local Mexican restaurant and as part of the festivities, a balloon entertainer went Read more…

By thefpiesfoundation, 3 years3 years ago
Living with FPIES

Living with FPIES: Halloween Ideas!

Halloween is one of my favorite days of the year. I love holidays in general, and even though Christmas will always have a special place in my heart, there are some pretty big expectations wrapped up (pun intended) around December 25. Big extended-family get-togethers, possibly involving travel, a fancy dinner Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

An Interview with the Awareness Critters Creator!

I was working on my master’s degree in health communication when I met my husband. Fast forward a year and a half later, I was sitting in the NICU with our newborn daughter feeling like I should have paid more attention to the practical aspects of the degree I had Read more…

By thefpiesfoundation, 4 years3 years ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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