As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions during the day, you are raising awareness. The setting doesn’t Read more…
Awareness is Action, and YOU help pave the path! At The FPIES Foundation, we recognize and stress the importance of awareness for this rare disorder. Because FPIES is rare, families can experience difficulty finding medical providers that are familiar with this diagnosis, and can receive poor advice from well-meaning friends Read more…
February is Dental Health Awareness Month. Planning for your child’s first dental exam can feel like a daunting task, especially if your child suffers from food allergies. Below are some tips to consider prior to the first visit. 1. When scheduling the appointment, be sure to inform the office of Read more…
Avoiding and Addressing Oral Texture Aversion Written by: Annette Mestern, OTR/L I am the mother to a two year old with Food Protein Induced Enterocolitis Syndrome (FPIES). I am also a Pediatric Occupational Therapist (OT). When my daughter was 10 months old her allergist recommended a period of time without any Read more…
The FPIES Foundation presents an awareness slideshow for FPIES (Food Protein Induced Enterocolitis Syndrome) for Food Allergy Awareness Week (FAAW) 2012. The video stars some adorable children who just happen to have FPIES. For more information on FPIES visit: www.thefpiesfoundation.org Video created by: Katie Lou Music by: Kevin Read more…
