Your voice: Be a part of the first FPIES Global Registry! A message from Joy Meyer, Co-Director of The FPIES Foundation You are more accustomed to hearing from The Foundation as a whole rather than me as an individual voice. I am the Co-Director of The FPIES Foundation. I am Read more…
With the help of this caring community of families living with Food Protein Induced Enterocolitis Syndrome, we have developed a set of new awareness cards for families living with FPIES, inspired by families. The business card-sized awareness cards are great for providing simple explanations of FPIES for friends, family, babysitters and Read more…
October brings Fall, Harvest Activities and Halloween! We have compiled a list of idea’s some parents of children living with FPIES like to celebrate a safe and allergy friendly Halloween. Pre-assembled treat bags! Make your own treat bags (safe candy or non-food treats) and pass out these pre-assembled treat bags to your neighbors ahead Read more…
Families living with FPIES were offered a rare treat in Boston, the chance to meet each other face to face and ask Allergy experts questions about the latest research and treatments available! Boston Children’s Hospital Hosted the event on Saturday, September 28, 2013. It was free to any family with a Read more…
Any time someone has a chronic health condition, they are usually encouraged to join a support group. Such groups have a reputation for encouragement, empowerment, and education, and those things are vital to the survival of a major health concern. FPIES is no different. Living with FPIES can be confusing, Read more…
Living with FPIES: Advocating for Your Child in School and Childcare Settings Nichole L. Huff, Ph.D., CFLE As a mom of a child with FPIES, one of the hardest decisions I ever made was entrusting someone else to care for my son, living with FPIES, for the first time. And, truthfully, Read more…
The FPIES Foundation Celebrates Anniversary with Huge Social Media Awareness Day Allows families to Text-A-Wish to support Foundation’s Efforts August 25, 2013: The FPIES Foundation is excited to celebrate its second anniversary of empowering, educating and helping families navigate Food Protein Induced Enterocolitis Syndrome, or FPIES. The Foundation is planning a Read more…
Cooking with FPIES in mind can be quite an adventure! When using substitutions and often uncommon ingredients, there can be a steep learning curve involved in figuring out how to turn safe ingredients into a variety of interesting dishes and baked goods. Fear not! Head over to the Cooking and Nutrition section Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions during the day, you are raising awareness. The setting doesn’t Read more…