“I Have FPIES” is a rhyming story from diagnosis to learning to live with this rare food allergy condition. It is filled with universal experiences that children and families navigating FPIES will understand and relate to. It provides a sense of community for children who may feel different than their friends and family and a sense that they are not alone with their feelings!
Navigating your child’s Food Protein-Induced Enterocolitis Syndrome (FPIES) can be tricky, but know that many parents face this challenge, so you’re not alone. A 2021 review shows that FPIES may not be as rare as it once was. This diagnosis may feel limiting for parents who want their children to explore new foods. However, proper research will help you make informed decisions, so your child still enjoys a tasty and balanced diet.
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Explaining FPIES to your child You may not have conversations with your baby or small child yet, but you are already communicating with them about their FPIES every day. In part three of our Three-Blog-Post Series Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Effectively sharing about your FPIES needs In the early days after an FPIES diagnosis, parents learn so much: from information about the diagnosis to navigating their new everyday life. As their days are re-shaped and the Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. How to Explain FPIES to Others As the parent or caregiver to a child with FPIES, you regularly find yourself having to explain the needs of your child: first with family and friends, then in places Read more…
Caregiver Anxiety and FPIES A guest post written and submitted by Mun Cho, Registered Dietitian and Food Allergy Parent. FPIES (Food Protein-Induced Enterocolitis Syndrome) is a non-IgE food allergy, which is different from the IgE-mediated food allergy that could potentially be anaphylactic. Acute FPIES involves excessive vomiting, which could lead Read more…
We love to hear about allergy-friendly food companies! Recently we had the opportunity to sit down with one for an interview! Here is our interview with Big Green Organic Foods: Millet Pasta! Tell us a little about your company and your aim to provide allergy-friendly services/products. Eating healthy should not Read more…
Calling all fans of pesto, this summery recipe for Zoodles with Basil Almond Pesto might just be your new favorite healthy “pasta” recipe. And it can be served as a main dish or side. What are “zoodles” you ask? Zucchini that are cut into noodle shape. But, if squash is Read more…
A FARE Collaborator blog Most of us don’t think twice about going on vacation or attending neighborhood barbecues, but for people managing food allergies, having others provide meals requires extra vigilance and planning. Those not living with food allergies are typically unaware of how easily and quickly an otherwise safe Read more…