The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” Read more…
Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a Read more…
With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient survey, “FPIES and the Microbiome.” This survey seeks to learn Read more…
We, at The FPIES Foundation, love to follow the research! These are our top 10 picks for FPIES articles of 2019 (in no particular order). Each of these articles brings some new data or novel idea to the ‘table’. We are so thankful to all of the practitioners and researchers Read more…
We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether Read more…
Have you ever looked back upon your life and been in awe as to how everything seems to have worked out for some higher purpose? I am still amazed at how many of my life choices were, unknowingly, preparing me to be the mom of an FPIES baby. A PhD Read more…
More Insights from the Global Patient Registry by Hilary Lagerwey Last year we shared some statistics gleaned from the data provided by FPIES families across the globe. The Global Patient Registry is a platform to collect information such as medical history, family history, and specific symptoms. The purpose behind this data repository is Read more…
Prof. Stefano Miceli Sopo works out of the Department of Pediatrics at Catholic University of the Sacred Heart in Rome, Italy. He has co-authored several studies on Food Protein Induced Enterocolitis Syndrome including: “Clinical management of food protein-induced enterocolitis syndrome” “FPIES, From Practice to Theory” “Food protein-induced enterocolitis syndrome (FPIES) Read more…