Thank you so much for your impact on making Global FPIES Day such a success! Our education, support and awareness efforts, coupled with the impact of your participation, reached a multitude of individuals affected by FPIES, their families, and the healthcare providers who serve them. Together, we: Provided hope. Illustrated Read more…
FPIES Trends and Insights: Caregiver/Patient Reported Data from the Global Patient Registry By Hilary Lagerwey For four years now we have been working on collecting data from FPIES patients across the world using our Global Patient Registry from Patient Crossroads, a leading registry platform among rare diagnosis. First of all, we want to Read more…
A Professional Spotlight on FPIES: Foundation Medical Advisory Board Member, Dr. J.Andrew Bird, Participates in FPIES Discussions at AAAAI This article references:“Trends in ProiderManagement of Patients with Food Protein Induced Enterocolitis Syndrome” Dr. Bird, tell us about this year’s annual meeting– we were thrilled to hear about your presentation there! Read more…
Whether you are nursing, starting solid foods with your child, or simply looking for a way to learn more about your child’s responses to foods in his/her diet, a food journal can be a helpful tool in figuring out safe vs. unsafe foods for your little one. When their little ones initially Read more…
Mangos for Max A child’s food allergy book by Dr. Jessica St. Louis Dr. Jessica St. Louis had the idea to write “Mangos for Max” when her oldest son with multiple food allergies was entering preschool. She was looking for a book that would introduce food allergies to preschoolers without overwhelming the young Read more…
Someone’s In the Kitchen with FPIES I have always loved being in the kitchen and even though my eldest daughter’s FPIES diagnosis threw me for a loop, it didn’t change that love. Creating new recipes for her and her little sister, also diagnosed with FPIES, has become a way of Read more…
FPIES: Simple Words, Complex Realities By Nichole L. Huff, Ph.D., CFLE One evening last week, in reviewing the papers sent home in my kindergartner’s daily folder, I noticed a flyer for a school fundraiser. An ice cream social. On Friday my son could have a big scoop of ice cream from a Read more…
Raise Awareness to FPIES with custom wristbands! With food allergy and FPIES allergy education and awareness days approaching, wristbands can be a great way to wear your awareness. We have teamed up with WristbandBros.com to give one lucky family living with FPIES a chance to win 200 free wristbands and a free design consultation! Read more…
This year, in honor of Rare Disease Day, a family in the FPIES community hosted an awareness event for FPIES. We, at the Foundation, found the event very encouraging and asked them to share their story… Chase’s FPIES Challenge started out as a way for me to help my friends Read more…
An interview with co-authors of the newly released book “Sense-ational Mealtimes” Denise Stapleton, PhD, Accredited Practicing Dietitian & Gillian Griffiths, Occupational Therapist.** Mealtime should be enjoyable, yet some children struggle,and their families struggle. Mealtimes for some families are fraught with ongoing grimacing, gagging, distress, anxiety, worry, frustration and anger. Do these phrases sound familiar? “He Read more…