INTRODUCING!
Parent-Led Virtual Support Group for Families Affected by FPIES
We’re considering starting a parent-led support group (virtual) designed to offer compassionate, peer-to-peer support for parents and families of children with FPIES. This group would serve as a safe and welcoming space where families can connect, share their experiences, exchange ideas and resources, and find understanding from others who are navigating a similar journey.
We also hope to host occasional virtual events featuring guest speakers—experts in FPIES or parents with lived experience—who can provide valuable insights and guidance.
If you’re interested in joining or learning more, please reach out to our newest volunteer, Santosh Sarawgi, at support@thefpiesfoundation.org. Once there is enough interest, Santosh will coordinate the details, including meeting format (Zoom or Teams), schedule, and frequency.
A few words from Santosh….“I am a 66-year-old grandfather to a child with FPIES, living in the Midwest. Through my family’s journey, I have witnessed firsthand the challenges, uncertainties, and emotional toll that FPIES brings to parents and caregivers. I have been actively researching FPIES online and regularly share information and resources with my son as we navigate this together. For the past six years, I have also been an active participant in another parent-led support group for a different illness, and I found it invaluable to both learn from and support others. I am eager to connect with and support other parents and caregivers in this FPIES group, and to share experiences and insights as we learn together.”
We look forward to building a supportive community together.
The FPIES Foundation does not provide medical advice, diagnosis or treatment. All information provided is intended for support, awareness and educational purposes and is not as medical advice and is not a substitute for care by a trained medical provider. For individualized medical advice, please consult a physician.
The FPIES Foundation provides resources as support to you. Use of our resources constitutes acknowledgment and understanding by the user that there may be links to other websites that are operated by parties or individuals that are not affiliated with The FPIES Foundation. The Foundation encourages you to evaluate websites yourself and discuss the information you find with your health care provider(s).
For more information please see our Terms of Use https://fpiesfoundation.org/terms-of-use/ and Links Policy https://fpiesfoundation.org/about-us-link-policy/
