The FPIES Online Learning Library

The Online Learning Library is a collection of multimedia resources to encourage the growth of awareness and education among medical professionals, families, and the communities that support individuals affected by FPIES.

New to FPIES?

The purpose of this webinar is to help families navigate the healthcare system by providing advocacy actions, tools, and resources to assist them, and their providers, as they care for their children living with FPIES.

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Join Dr. Nasir as she discusses an overview of FPIES– suitable for parents and for professionals who are beginning to learn about FPIES.

Dr. Amana Nasir joins us once again to speak with families and practitioners about preparing children for various GI procedures and tests with helpful and practical tips!

You are not alone! For additional information to get you started learning more about FPIES, be sure to visit our toolbox. Do not hesitate to reach out to us and request vital resources, like rack cards and FPIES community awareness cards, that can help you to educate your family and community about ways to help keep your little one safe and healthy. We can’t wait to hear from you!

FPIES Research and Registry

Dr. Jeanelle Boyer, who is currently researching the microbiome in the gut of infants affected by FPIES 12 months old and younger, gives us an update her intriguing study.

Dr. Jeanelle Boyer, is a professor at Keene State College who continues to research the microbiome in the gut of infants affected by FPIES. Dr. Boyer provides the FPIES community with an update on her latest and continued research. Dr. Boyer is accompanied by her daughter, her inspiration behind her research, in this video update for Global FPIES Day 2017.
To learn more about Dr. Boyer’s research: http://fpiesfoundation.blogspot.com/2…

Former CEO Kyle Brown of Patient Crossroads (now known as ALtavoice) explains how the FPIES Global Patient Registry (PIN) can help the medical and patient communities affected by FPIES.
Visit the FPIES Foundation Global Patient Registry: www.fpiesregistry.com

For Families and Professionals

The Children’s Medical Nutrition Alliance takes us through the steps of navigating insurance as it pertains to medical nutrition (i.e. elemental formula, tube feeding, etc) and explains how to advocate for your child during this process.
Learn more about the CMNuA at: http://cmnua.org/

Food allergies can be expensive! Check out this slide show aimed at discussing tips and tricks for saving money when living with food allergies. If you have addition tips to add, please reach out and share them with us today!

The purpose of this webinar is to aid nutrition professionals by providing nutritional
care plan guidelines, expert tips and tools, as well as numerous resources to assist
them as they monitor and provide care for their patients living with FPIES.

Join Co-Founder and Co-Director of The FPIES Foundation, Amanda LeFew, as she invites you to learn about various aspects of cooking with FPIES. From essential equipment to original recipe creation to interactive activities, this presentation will be sure to get the creative juices flowing!

Joy Meyer shares with you how she makes hemp milk for her son who lives with Food Protein Induced Enterocolitis Syndrome (FPIES) and has multiple food allergy triggers. Hemp milk is a delicious and nutritious non-dairy milk alternative!

In this “parent-to-parent” video, Amanda LeFew takes families through the process of building and implementing calm kits in order to foster coping skills for their children.

Join Licensed Marriage Family Therapist and mom of a child with FPIES, Honor Genetski, as she explores how FPIES can impact family dynamics. She discusses seven key strategies to help your child affected by FPIES to better cope with this difficult diagnosis, and describes practical examples for putting these strategies in action in your own home.

Honor Genetski, MFT, guides parents and caregivers through an exercise in self-care, emphasizing the importance of properly caring for ourselves in order to best care for our children.

Join Dr. Nichole Huff, PhD, CFLE, as she explores ways to address special food needs with your child, as it relates to his/her own developmental level. An experienced professional and a parent to a child diagnosed with FPIES, Dr. Huff gives excellent insights for parents, caregivers and educators alike. You won’t want to miss this one!

For Kids

Author Claudine Crangle reads her children’s book, “Woolfred Cannot Eat Dandelions,” a story about a litte sheep learning to cope with his food allergy. A great read for those looking to help children better understand FPIES and food allergies in general.

A basic teaching tool for preschool and school-age children to learn skills for self-advocacy and self-care when living with food allergies, specifically FPIES.

For Sharing Awareness

Learn some great tips about life with FPIES shared from families living with Food Protein Induced Enterocolitis Syndrome!

Join Heather Martin as she explores five of the common myths related to Food Protein Induced Enterocolitis Syndrome (FPIES). Debunking common myths is a great way to start the conversation about FPIES awareness!

Have you ever wondered the ins and outs of creating an FPIES resource table for your next awareness event? FPIES Foundation Co-Founder and Co-Executive Director, Amanda LeFew, guides you through the basic steps you need to follow to get started.

“How to Help an FPIES Family Today” is a letter to our family and friends that provides insight into the life and needs of an FPIES family and how friends and extended family can support and encourage the family affected by this diagnosis. Read more on here: http://fpiesfoundation.org/how-to-hel…

In 2015, we not only celebrated one week of Food Allergy Awareness, but together with FARE and our other partner organizations, we celebrated the entire month of May as Food Allergy Action Month. Join us every year as we raise FPIES awareness across our global communities!

‘Be the Voice’ in your community with our awareness tools and join in our social media campaigns. Our voices together will educate, empower, connect, advocate and call to action — truly impacting improved standards of care. Help those affected today and tomorrow. It starts with one, it starts with you. ‘Be the Voice’ to increase FPIES awareness!

The FPIES Foundation presents an awareness slideshow for FPIES (Food Protein Induced Enterocolitis Syndrome) for Food Allergy Awareness Week (FAAW) 2012. The video stars some adorable children who just happen to have FPIES.

We are not alone. FPIES is a rare disease, but 1 in 10 people worldwide suffer from some type of Rare Disease. There are 7000 rare diseases identified, including FPIES. In the U-S, a rare disease is defined as one that affects fewer than 200,000 people. There is power in numbers. Every year for Rare Diseases Day on February 28th, we put a face on the 1 in 10.

The FPIES Foundation theme for Food Allergy Awareness Week 2013 is “Awareness is Action”! Your actions are “paving the path”. Together, with collaboration of families and medical professionals, we will continue to make changes today to building this lasting foundation for tomorrow, providing a network of caring, the support your need to support your child.

Page published: Oct. 13, 2016. Updated: Feb. 15, 2018. Copyright © 2016, The FPIES Foundation