Helping families

Parental psychosocial distress: A needs assessment for parents of infants 0 to 1 year with food allergies and intolerances

Parental psychosocial distress: A needs assessment for parents of infants 0 to 1 year with food allergies and intolerances. A food allergy diagnosis can be a life-altering experience.  The stress involved for the child and their parents has been underappreciated. We recently learned of a new research study examining parental Read more…

FPIES Registry

Power of the PIN!

In 2013 we, at The FPIES Foundation, presented the first-of-its-kind FPIES Global Patient Registry through the Patient Crossroads CONNECT program a patient registry platform company.  Last year, Patient Crossroads underwent a rebranding to become AltaVoice.  Through Altavoice we were introduced to the Power of the Patients Insights Network (PIN) which enables us to further amplify the Read more…