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Our Blog -A Network of Caring

Helping families

Parental psychosocial distress: A needs assessment for parents of infants 0 to 1 year with food allergies and intolerances

Parental psychosocial distress: A needs assessment for parents of infants 0 to 1 year with food allergies and intolerances. A food allergy diagnosis can be a life-altering experience.  The stress involved for the child and their parents has been underappreciated. Read more…

By thefpiesfoundation, 7 years ago
Helping families

Out and About with FPIES: Or, Faking Spontaneity through Obsessive Planning, Part One

Before I had kids, I always assumed we’d be one of those families that were always on the go – playing at parks, exploring our neighborhood, doing fun outings like museums and the zoo. And then, you know, FPIES. Without Read more…

By thefpiesfoundation, 7 yearsMay 6, 2018 ago
Helping families

Out and About with FPIES: Or, Faking Spontaneity Through Obsessive Planning, Part Two – the Freezer Edition

Emergency bread.   This may sound like a bizarre concept to families without allergies, and possibly even to those with. The first time I used the term, my husband* looked at me like I was crazy. “What’s emergency bread?” I Read more…

By thefpiesfoundation, 7 yearsApril 25, 2018 ago
Helping families

Paying Medical Bills as Simply as Possible

Paying Medical Bills as Simply as Possible By Margaret Hancock For those navigating FPIES – or any rare disease – hospital, specialist, nutritional, and additional medical bills can be quite confusing and time-consuming. I am grateful for a brief stint Read more…

By thefpiesfoundation, 8 yearsMarch 23, 2018 ago
Helping families

Play Safe this Winter

Winter can seem to drag on forever when your energetic little one can’t spend quite as much time running around outside. We’ve put together some ideas for indoor activities, as well as some tips on staying safe and healthy, to Read more…

By thefpiesfoundation, 8 yearsMarch 9, 2018 ago
Living with FPIES

Skills We Have Learned While Caring For Our Children Living With FPIES

This post is inspired by an FPIES article appearing on The Mighty “What I’ve learned as a mother of a child with FPIES”.  At the end of the article, the author mentions her ability to know the cross contamination of Read more…

By thefpiesfoundation, 8 yearsFebruary 23, 2018 ago
Helping families

Traveling to Walt Disney World with FPIES

Traveling to Walt Disney World with FPIES By: LL McKenzi Soon after packing up and moving our family south, life turned upside down as our infant son was diagnosed with Food Protein-Inducted Enterocolitis Syndrome (FPIES). We were one of the Read more…

By thefpiesfoundation, 8 years ago
Helping families

Preparing for a Food Challenge

When navigating through the FPIES reality, one of the more regular activities is a food challenge. When we began introducing foods to our son, several challenges resulted in days worth of medical attention. Now, each and every food introduction we Read more…

By thefpiesfoundation, 8 yearsDecember 3, 2017 ago
In The News

Global FPIES Day 2017: Steps4FPIES

We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. Read more…

By thefpiesfoundation, 8 yearsNovember 19, 2017 ago
Helping families

Talking with Children about Allergies: A Guest Post

This post originally appeared on Hots & Olives, Joyful Living with Allergies and is being shared here today by author Margaret Hancock, food allergy and mom to a child with FPIES. It was kids night at the local Mexican restaurant Read more…

By thefpiesfoundation, 8 yearsNovember 6, 2017 ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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