Halloween is one of my favorite days of the year. I love holidays in general, and even though Christmas will always have a special place in my heart, there are some pretty big expectations wrapped up (pun intended) around December Read more…
Before I had my two children, I was never much of a kitchen gadgets or appliances person. Most of what I needed to do in the kitchen, I could do by hand, and I didn’t want to pay for them, Read more…
One of the things that I find I struggle with as an FPIES mom is making food fun for my kids. My youngest can eat very few packaged foods, and so anything fun he gets has to come from me. Read more…
A diagnosis of FPIES can be life-altering. So, when The Mighty asked our community for some of the things parents of children living with FPIES are doing, because of the diagnosis, that other people may not realize, the response was Read more…
In 2013 we, at The FPIES Foundation, presented the first-of-its-kind FPIES Global Patient Registry through the Patient Crossroads CONNECT program a patient registry platform company. Last year, Patient Crossroads underwent a rebranding to become AltaVoice. Through Altavoice we were introduced to the Power of the Patients Read more…
Here, at The FPIES Foundation, we love food journals! You can find a page in the FPIES toolbox dedicated just to food journals and we are inspired everyday by the food journals you have created and have shared with us. We have Read more…
March 30th was National Doctors’ Day. Doctors across our country were recognized for the dedicated and tireless work they do each day. Everyday, we acknowledge and appreciate the contributions of the many great practitioners that support our children and families affected Read more…
Have you ever looked back upon your life and been in awe as to how everything seems to have worked out for some higher purpose? I am still amazed at how many of my life choices were, unknowingly, preparing me Read more…
Hospital stays can happen all too often for many families living with FPIES and we know it can be difficult to keep your little one occupied. FPIES parent Zack Skrip gave us some really great ideas back in June on Things Read more…
The FPIES Foundation has joined forces with 30 million Americans and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention Read more…