From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…
We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son. Read more…
This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!
As we celebrate our seventh anniversary at The FPIES Foundation, I have been looking back over the years since our beginnings and since the start of my own family’s FPIES journey. I smile as I remember families that have come and gone from our community. Even though they may have Read more…
Our children are the cornerstone of The Foundation. We strive everyday to educate, advocate and empower the families and medical professionals who support them The FPIES Foundation is excited to have recently launched the ‘Kids Spot.’ The ‘Kids Spot’ is designed with young children and their siblings in mind. It’s a Read more…
With the help of this caring community of families living with Food Protein Induced Enterocolitis Syndrome, we have developed a set of new awareness cards for families living with FPIES, inspired by families. The business card-sized awareness cards are great for providing simple explanations of FPIES for friends, family, babysitters and Read more…
It’s back to school time. Time for school supplies and new backpacks, new clothes and fresh haircuts. For families living with FPIES, back to school time means something else. Time to worry if your child is safe at school. Time to worry about every birthday treat, special snack or basic lunch Read more…
Our FPIES Story Nichole L. Huff, Ph.D., CFLE My firstborn was a textbook baby, which was fitting because I prepped for motherhood as best I knew how—I studied. I read parenting magazines and child development books and perused baby websites. Surely my daughter read them too, never missing a Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions during the day, you are raising awareness. The setting doesn’t Read more…