FPIES Trends and Insights: Caregiver/Patient Reported Data from the Global Patient Registry By Hilary Lagerwey For four years now we have been working on collecting data from FPIES patients across the world using our Global Patient Registry from Patient Crossroads, a leading registry Read more…
According to the FPIES Global Patient Registry, caregivers/patients report an average of 1-5 months, with several families taking up to a year, for a child to receive an FPIES diagnosis. A year to diagnosis. A year of experiencing symptoms and reactions. Read more…
The FPIES Foundation is excited that the Centers for Disease Control (CDC) now recognizes Food Protein-Induced Enterocolitis Syndrome (FPIES), and has appointed it with diagnostic code K52.21, among allergic digestive diseases. This is a step that has the building blocks to make Read more…
Over the last year we have been inspired by the impact of your unique talents and hard work as you continue building awareness to FPIES. As we approach our 2nd annual Global Day, we wish to share some of these events Read more…
Over the last four years, we have watched our little ones grow right alongside the Foundation. So many of the new families we “met” after our founding now contact us with their inspirational stories– we proudly hear the stories of Read more…
A Professional Spotlight on FPIES: Foundation Medical Advisory Board Member, Dr. J.Andrew Bird, Participates in FPIES Discussions at AAAAI This article references:“Trends in ProiderManagement of Patients with Food Protein Induced Enterocolitis Syndrome” Dr. Bird, tell us about this year’s annual Read more…
Whether you are nursing, starting solid foods with your child, or simply looking for a way to learn more about your child’s responses to foods in his/her diet, a food journal can be a helpful tool in figuring out safe vs. Read more…
Mangos for Max A child’s food allergy book by Dr. Jessica St. Louis Dr. Jessica St. Louis had the idea to write “Mangos for Max” when her oldest son with multiple food allergies was entering preschool. She was looking for a book Read more…
Someone’s In the Kitchen with FPIES I have always loved being in the kitchen and even though my eldest daughter’s FPIES diagnosis threw me for a loop, it didn’t change that love. Creating new recipes for her and her little Read more…
FPIES: Simple Words, Complex Realities By Nichole L. Huff, Ph.D., CFLE One evening last week, in reviewing the papers sent home in my kindergartner’s daily folder, I noticed a flyer for a school fundraiser. An ice cream social. On Friday my son Read more…