From the moment we hold our child for the first time, to catching them when they fall down on the playground, to helping them through food trials and reactions, one of our largest jobs as parents is simply: CARE. At Read more…
FPIES: Caring for the Caregiver Nichole L. Huff, Ph.D., CFLE Recently I read an article by the Family CaregivingAlliance on caregiver stress. As an introduction to the topic, the author compared the need to reduce caregiver stress to the safety rules Read more…
Feeding Tube Awareness Week®, launched in 2011 by the Feeding Tube Awareness Foundation, is a unique opportunity to raise awareness about feeding tubes. There are several reasons a child may need a feeding tube. Food allergies can be one of those reasons Read more…
World Rare Diseases Day February 28, 2014 Rare Disease Day 2014 focuses on care and encourages everyone in the rare disease community to Join Together for Better Care. We are not alone. Here at The FPIES Foundation that is something we Read more…
Our children are the cornerstone of The Foundation. We strive everyday to educate, advocate and empower the families and medical professionals who support them The FPIES Foundation is excited to have recently launched the ‘Kids Spot.’ The ‘Kids Spot’ is designed Read more…
The programs of The FPIES Foundation are centered on the child living with Food Protein Induced Enterocolitis Syndrome. Our programs and initiatives are maintained on a lean budget, minimizing spending while maximizing returns for families. We operate with generous donations of time Read more…
FPIES: A Diagnosis, not a Definition Nichole L. Huff, Ph.D., CFLE As Thanksgiving Day draws near, Facebook and other social media outlets are abuzz with people sharing blessings in their lives. For things both big and small, people are talking Read more…
Your voice: Be a part of the first FPIES Global Registry! A message from Joy Meyer, Co-Director of The FPIES Foundation You are more accustomed to hearing from The Foundation as a whole rather than me as an individual voice. Read more…
With the help of this caring community of families living with Food Protein Induced Enterocolitis Syndrome, we have developed a set of new awareness cards for families living with FPIES, inspired by families. The business card-sized awareness cards are great for Read more…
October brings Fall, Harvest Activities and Halloween! We have compiled a list of idea’s some parents of children living with FPIES like to celebrate a safe and allergy friendly Halloween. Pre-assembled treat bags! Make your own treat bags (safe candy or non-food treats) Read more…