Our Families’ Beginnings: Joy’s family: Our son, Samuel, was sick for months before we knew his symptoms had a name. Food Protein Induced Enterocolitis Syndrome is what the allergist confirmed after months of trying to pinpoint it on our own, Read more…
The FPIES Foundation Celebrates Anniversary with Huge Social Media Awareness Day Allows families to Text-A-Wish to support Foundation’s Efforts August 25, 2013: The FPIES Foundation is excited to celebrate its second anniversary of empowering, educating and helping families navigate Food Protein Read more…
It’s back to school time. Time for school supplies and new backpacks, new clothes and fresh haircuts. For families living with FPIES, back to school time means something else. Time to worry if your child is safe at school. Time to Read more…
Our FPIES Story Nichole L. Huff, Ph.D., CFLE My firstborn was a textbook baby, which was fitting because I prepped for motherhood as best I knew how—I studied. I read parenting magazines and child development books and perused baby Read more…
Cooking with FPIES in mind can be quite an adventure! When using substitutions and often uncommon ingredients, there can be a steep learning curve involved in figuring out how to turn safe ingredients into a variety of interesting dishes and Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions Read more…
Awareness is Action, and YOU help pave the path! At The FPIES Foundation, we recognize and stress the importance of awareness for this rare disorder. Because FPIES is rare, families can experience difficulty finding medical providers that are familiar with Read more…
Rare Diseases Day International theme for 2013 was “Rare Disorders Without Borders”. With continued increased awareness, the FPIES community will continue to break down these borders- not only connecting us across miles (and countries) also between patient and practitioner, researcher, Read more…
February is Dental Health Awareness Month. Planning for your child’s first dental exam can feel like a daunting task, especially if your child suffers from food allergies. Below are some tips to consider prior to the first visit. 1. When Read more…