It was a beautiful afternoon and my girls were so excited– the long-awaited baking had begun! Since they both have separate safe food lists and separate baking equipment, each girl got her own turn in the kitchen with mama. My eldest tied on her apron, read the recipe, and started Read more…
According to the FPIES Global Patient Registry, caregivers/patients report an average of 1-5 months, with several families taking up to a year, for a child to receive an FPIES diagnosis. A year to diagnosis. A year of experiencing symptoms and reactions. A year looking for answers and support. The FPIES Foundation is Read more…
Over the last year we have been inspired by the impact of your unique talents and hard work as you continue building awareness to FPIES. As we approach our 2nd annual Global Day, we wish to share some of these events with everyone, in hopes to inspire you, that you too Read more…
Global FPIES Day is fast approaching, set for October 14th, 2014. We are so excited for this huge awareness raising opportunity and we are also so excited that so many FPIES Families are getting involved! There are quite a few events and fundraising opportunities right now and we thought it Read more…
Our Families’ Beginnings: Joy’s family: Our son, Samuel, was sick for months before we knew his symptoms had a name. Food Protein Induced Enterocolitis Syndrome is what the allergist confirmed after months of trying to pinpoint it on our own, with just the Pediatrician and Dietitian help. We had been Read more…
The FPIES Foundation Celebrates Anniversary with Huge Social Media Awareness Day Allows families to Text-A-Wish to support Foundation’s Efforts August 25, 2013: The FPIES Foundation is excited to celebrate its second anniversary of empowering, educating and helping families navigate Food Protein Induced Enterocolitis Syndrome, or FPIES. The Foundation is planning a Read more…
NON PROFIT TO SUPPORT PEDIATRIC PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI, OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati, OH, is announcing the launch of their new interactive web site on Monday, August 27, 2012, to celebrate the organization’s one-year anniversary. The organization’s executive board identified a dire Read more…