Food Protein Induced Enterocolitis Syndrome (FPIES) is a recognized rare diagnosis – globally. From Rare Diseases Day, “A rare disease is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time, and rare in Europe when it affects fewer than 1 in 2000“. “Alone we are rare, Read more…
From the moment we hold our child for the first time, to catching them when they fall down on the playground, to helping them through food trials and reactions, one of our largest jobs as parents is simply: CARE. At the moment our child’s medical team meets him or her, Read more…
The programs of The FPIES Foundation are centered on the child living with Food Protein Induced Enterocolitis Syndrome. Our programs and initiatives are maintained on a lean budget, minimizing spending while maximizing returns for families. We operate with generous donations of time and talents, all staff- volunteers, advisors and executive are unpaid Read more…