The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!
This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic reactions commonly seen in the media are IgE reactions — Read more…
Food Allergy Awareness Week (FAAW) is May 10-16 this year. Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).
Emergency bread. This may sound like a bizarre concept to families without allergies, and possibly even to those with. The first time I used the term, my husband* looked at me like I was crazy. “What’s emergency bread?” I explained what I meant by it, but it didn’t really Read more…
Every family is unique and weaves an important piece in our overall understanding of FPIES as well as the impact– medical and non-medical– this rare diagnosis has on our families, children and professionals. As you read the story that follows, please remember that though your family’s story may differ in Read more…
FPIES: Simple Words, Complex Realities By Nichole L. Huff, Ph.D., CFLE One evening last week, in reviewing the papers sent home in my kindergartner’s daily folder, I noticed a flyer for a school fundraiser. An ice cream social. On Friday my son could have a big scoop of ice cream from a Read more…
Food Allergy Awareness Week (May 10-16th) has recently been expanded to include FoodAllergy ACTION month. Plus, this year a National FPIES day on May 4th has been included to honor the month of Allergy Awareness. National FPIES Day is in addition to Global FPIES Day, on Oct.14th, established by The Foundation in 2014. Two Read more…
Raise Awareness to FPIES with custom wristbands! With food allergy and FPIES allergy education and awareness days approaching, wristbands can be a great way to wear your awareness. We have teamed up with WristbandBros.com to give one lucky family living with FPIES a chance to win 200 free wristbands and a free design consultation! Read more…
May is National Asthma and Allergy Awareness month! In 1998, the Food Allergy & Anaphylaxis Network, now Food Allergy Research and Education Foundation (FARE), created Food Allergy Awareness Week (FAAW) to educate others about food allergies, a potentially life-threatening medical condition. This year, FARE has declared the entire month of May Food Allergy Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…