This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry
As we celebrate our seventh anniversary at The FPIES Foundation, I have been looking back over the years since our beginnings and since the start of my own family’s FPIES journey. I smile as I remember families that have come and gone from our community. Even though they may have Read more…
Winter can seem to drag on forever when your energetic little one can’t spend quite as much time running around outside. We’ve put together some ideas for indoor activities, as well as some tips on staying safe and healthy, to keep you and your children busy and happy until the Read more…
It was a beautiful afternoon and my girls were so excited– the long-awaited baking had begun! Since they both have separate safe food lists and separate baking equipment, each girl got her own turn in the kitchen with mama. My eldest tied on her apron, read the recipe, and started Read more…
Every family is unique and weaves an important piece in our overall understanding of FPIES as well as the impact– medical and non-medical– this rare diagnosis has on our families, children and professionals. As you read the story that follows, please remember that though your family’s story may differ in Read more…
Over the last year we have been inspired by the impact of your unique talents and hard work as you continue building awareness to FPIES. As we approach our 2nd annual Global Day, we wish to share some of these events with everyone, in hopes to inspire you, that you too Read more…
Raise Awareness to FPIES with custom wristbands! With food allergy and FPIES allergy education and awareness days approaching, wristbands can be a great way to wear your awareness. We have teamed up with WristbandBros.com to give one lucky family living with FPIES a chance to win 200 free wristbands and a free design consultation! Read more…
The FPIES Foundation is excited to celebrate its third anniversary of empowering, educating and helping families around the world to navigate life with Food Protein-Induced Enterocolitis Syndrome (FPIES). This past year was packed with numerous accomplishments, big and small. The FPIES Foundation achieved its goal of launching a first-of-its-kind FPIES Read more…
For some children with multiple food allergies such as Food Protein Induced Enterocolitis Syndrome (FPIES), a feeding tube is a necessary means for getting the optimal nutrition necessary for growth. The Feeding Tube Awareness Foundation is “dedicated to providing parents and caregivers with the information needed for day-to-day life with a Read more…
NON PROFIT TO SUPPORT PEDIATRIC PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI, OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati, OH, is announcing the launch of their new interactive web site on Monday, August 27, 2012, to celebrate the organization’s one-year anniversary. The organization’s executive board identified a dire Read more…