Awareness is the cornerstone to building a foundation of active support for FPIES children. The FPIES Foundation supports efforts to raise awareness to FPIES in your local communities. Raising awareness can be simple and start with a single conversation! For examples of simple awareness conversations and how they were […]
Families living with FPIES were offered a rare treat in Boston, the chance to meet each other face to face and ask Allergy experts questions about the latest research and treatments available! Boston Children’s Hospital Hosted the event on Saturday, September 28, 2013. It was free to any family with a […]
Living with FPIES: Advocating for Your Child in School and Childcare Settings Nichole L. Huff, Ph.D., CFLE As a mom of a child with FPIES, one of the hardest decisions I ever made was entrusting someone else to care for my son, living with FPIES, for the first time. And, truthfully, […]
Our Families’ Beginnings: Joy’s family: Our son, Samuel, was sick for months before we knew his symptoms had a name. Food Protein Induced Enterocolitis Syndrome is what the allergist confirmed after months of trying to pinpoint it on our own, with just the Pediatrician and Dietitian help. We had been […]
Our FPIES Story Nichole L. Huff, Ph.D., CFLE My firstborn was a textbook baby, which was fitting because I prepped for motherhood as best I knew how—I studied. I read parenting magazines and child development books and perused baby websites. Surely my daughter read them too, never missing a […]
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed […]
We became parents in the summer of 2008. Lucy was amazing… and exhausting. My husband is active duty Navy, and had to leave very shortly after Lucy’s birth. The first few months were a blur of sleepless nights and moving several hundred miles away, alone with a baby to a […]
Featuring FPIES events; from raising awareness in your community, to family benefits, fundraising, and more! Feb. 24, 2017: An FPIES Family is honoring Rare Disease Day with her creation of a Rare But Real hand […]
No one could have ever prepared us for Rowan’s first FPIES reaction at 2 months old. We were on vacation – completely helpless and overwhelmed with fear and confusion about what was happening to our precious newborn baby. She was an exclusively breastfed baby, but we had given her a […]
In 1998, the Food Allergy & Anaphylaxis Network, now FARE, created Food Allergy Awareness Week to educate others about food allergies, a potentially life-threatening medical condition. The FPIES Foundation is participating in Food Allergy Awareness Week (FAAW), May 12-18, 2013 with awareness campaigns through our website, social media and other online […]