May is National Asthma and Allergy Awareness month! In 1998, the Food Allergy & Anaphylaxis Network, now Food Allergy Research and Education Foundation (FARE), created Food Allergy Awareness Week (FAAW) to educate others about food allergies, a potentially life-threatening medical condition. This year, FARE has declared the entire month of May Food Allergy […]
‘Be the Voice’ for FPIES during Food Allergy Awareness Week 2014! May is national Asthma and Allergy Awareness month and May 11-17 is dedicated to food allergy awareness. The FPIES Foundation invites you to use this week to help us raise awareness for Food Protein Induced Enterocolitis Syndrome, or FPIES. ‘Be […]
Food Protein Induced Enterocolitis Syndrome (FPIES) is a recognized rare diagnosis – globally. From Rare Diseases Day, “A rare disease is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time, and rare in Europe when it affects fewer than 1 in 2000“. “Alone we are rare, […]
Wyatt was born on a beautiful June day two and half years ago. He has been a fighter from his very first seconds. In the womb he fought to stay alive and grow, and in his first moments of life as a baby, he fought to live, and to breathe. […]
From the moment we hold our child for the first time, to catching them when they fall down on the playground, to helping them through food trials and reactions, one of our largest jobs as parents is simply: CARE. At the moment our child’s medical team meets him or her, […]
FPIES: Caring for the Caregiver Nichole L. Huff, Ph.D., CFLE Recently I read an article by the Family CaregivingAlliance on caregiver stress. As an introduction to the topic, the author compared the need to reduce caregiver stress to the safety rules given just before takeoff on an airplane—the ones that instruct […]
Bryce’s story of Hope and Perseverance Over the past 22 months I have learned to accept the things I cannot change, to have courage to change the things I can, and the wisdom to know the difference. This is the story of my beautiful son; Bryce’s journey of hope and […]
The programs of The FPIES Foundation are centered on the child living with Food Protein Induced Enterocolitis Syndrome. Our programs and initiatives are maintained on a lean budget, minimizing spending while maximizing returns for families. We operate with generous donations of time and talents, all staff- volunteers, advisors and executive are unpaid […]
FPIES: A Diagnosis, not a Definition Nichole L. Huff, Ph.D., CFLE As Thanksgiving Day draws near, Facebook and other social media outlets are abuzz with people sharing blessings in their lives. For things both big and small, people are talking about thankfulness. For parents of children with FPIES, however, the anticipation […]
Your voice: Be a part of the first FPIES Global Registry! A message from Joy Meyer, Co-Director of The FPIES Foundation You are more accustomed to hearing from The Foundation as a whole rather than me as an individual voice. I am the Co-Director of The FPIES Foundation. I am […]