In October, The FPIES Foundation was honored to attend the Annual North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) meeting. NASPGHAN brings pediatric training and advancements to this yearly conference. We had the privilege of meeting and speaking with several hundred compassionate Pediatric Gastroenterologist Practitioners, Nurses, and Nutrition […]
EM’s Journey with FPIES My pregnancy and labor with Ella Mae was eventful. I will spare you the details but she was definitely wild from the start. I knew from the beginning she had a strong purpose to be in this world because she overcame a lot of obstacles to […]
Today, on Global FPIES Day, at The FPIES Foundation, we are proud announce the official proclamation for the day. The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. Collaboration among medical professionals, families […]
The FPIES Foundation invites everyone to participate in the first official celebration year of Global FPIES Day on October 14th! FPIES (Food Protein-Induced Enterocolitis Syndrome) is a rare type of food allergy and the need for awareness, education and support around the globe is great. Newest MAB member, from Spain, Sergio […]
Global FPIES Day is fast approaching, set for October 14th, 2014. We are so excited for this huge awareness raising opportunity and we are also so excited that so many FPIES Families are getting involved! There are quite a few events and fundraising opportunities right now and we thought it […]
Educational Resources for Global FPIES Day ~ October 14th! Download Our Newest Brochure https://youtu.be/wpS9Dk4CNMo Introducing a new section on our website: resources for adults with FPIES. Find resources for work, school, and daily life! FPIES in Adults As we celebrate Global FPIES Day, a time for our global community of […]
The FPIES Foundation is excited to celebrate its third anniversary of empowering, educating and helping families around the world to navigate life with Food Protein-Induced Enterocolitis Syndrome (FPIES). This past year was packed with numerous accomplishments, big and small. The FPIES Foundation achieved its goal of launching a first-of-its-kind FPIES […]
The FPIES Global Patient Registry Getting to Know CONNECT Part 3 of 3 in Registry Series What defines the CONNECT program? Patient Crossroads’ CONNECT program is, “a registry platform, which allows patients around the world to join others in reporting their own experience of disease.”– From the Patient Crossroads Advocacy Brochure According […]
The FPIES Global Registry Getting to Know the Patient Registry Part 2 of 3 in Registry Series What is a Patient Registry? Also referred to as a “disease registry” or “clinical registry,” a Patient Registry is a program that collects and stores data related to health information for a specific purpose and in […]
The FPIES Global Patient Registry An Introduction and Overview Part 1 of 3 in a Registry Series In November 2013, we at The FPIES Foundation presented the first-of-its-kind FPIES Global Patient Registry, via the Patient Crossroads CONNECT program. Some Key Terms: Patient Registry: Also referred to as a “disease registry” or “clinical registry,” […]