Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each […]
This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry
Learn About the Day FPIES: Rare But Real Join us each February 28/29th as we mark Rare Disease Day, in solidarity with countless other organizations supporting individuals living with rare conditions! Started in 2008 by EURORDIS and its Council of National Alliances, this important day is a great time to […]
Parental psychosocial distress: A needs assessment for parents of infants 0 to 1 year with food allergies and intolerances. A food allergy diagnosis can be a life-altering experience. The stress involved for the child and their parents has been underappreciated. We recently learned of a new research study examining parental […]
SHaring Awareness: Be the Voice! Every May, we join with other partners in the food allergy community to raise awareness on a local and global scale. At The FPIES Foundation, we focus our attention on raising FPIES awareness in order to foster greater support and resources for our affected families. […]
Before I had kids, I always assumed we’d be one of those families that were always on the go – playing at parks, exploring our neighborhood, doing fun outings like museums and the zoo. And then, you know, FPIES. Without getting into too much detail (let’s just say the words […]
We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether […]
Facebook Twitter Youtube Instagram Linkedin Pinterest Emergency Care Learn how to identify, manage and seek help for acute FPIES reactions Toolbox Your one-stop-shop for getting started with your family’s FPIES journey Learning Library Expand your knowledge of FPIES with FREE online and printable resources FPIES Registry Join the Global FPIES […]
News & Events 2016 Dec. 31, 2016: Powerful voices! This story submitted by an FPIES family to The Mighty is one of their most-shared stories of the year! Nov. 28, 2016: The FPIES Foundation has been granted renewal of our HON (Health on the Net) certification. Medical Information you […]
The FPIES Foundation is proud to celebrate the third annual Global FPIES Day, a day for bringing our many communities together— families, friends and professionals– in the name of increased awareness of FPIES. This year, we explore “Tools that Build Bridges,” offering presentations tailored to families, communities, medical professionals, […]