Before I had my two children, I was never much of a kitchen gadgets or appliances person. Most of what I needed to do in the kitchen, I could do by hand, and I didn’t want to pay for them, didn’t want to clean them, and I didn’t want to […]
In 2013 we, at The FPIES Foundation, presented the first-of-its-kind FPIES Global Patient Registry through the Patient Crossroads CONNECT program a patient registry platform company. Last year, Patient Crossroads underwent a rebranding to become AltaVoice. Through Altavoice we were introduced to the Power of the Patients Insights Network (PIN) which enables us to further amplify the […]
When our son, Brennan, was four months old I introduced a small amount of rice cereal to his formula. About 2 hours later our baby was extremely sick, inconsolable and pale. We rushed him to the emergency room where he appeared to lose consciousness. The first of countless tests were […]
Here, at The FPIES Foundation, we love food journals! You can find a page in the FPIES toolbox dedicated just to food journals and we are inspired everyday by the food journals you have created and have shared with us. We have shared designs in the past, you can revisit those in […]
FAAW 2016 FAAW 2015 Food Allergy Awareness Week is an important opportunity to raise awareness and educate our communities about FPIES (Food Protein-Induced Enterocolitis Syndrome). Together, we can Be the Voice for FPIES– spurring research, education and awareness to lead to improved care those affected by FPIES! FAAW 2014 FAAW […]
The FPIES Foundation has joined forces with 30 million Americans and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face. For this 10th Rare […]
2015: News and Events Dec. 15, 2015: The FPIES Foundation is proud to announce a research grant for FPIES mom and Professor of Health Science Dr. Jeanelle Boyer. Dr Boyer will research the role microbiomes may play in the gut of an FPIES infant. Read more from Keene State College, “Professor […]
2014: News and Events November 5, 2014: The FPIES Foundation has been honored with a prestigious 2014 Top-Rated Award by GreatNonprofits, the leading provider of user reviews about nonprofit organizations. The Top-Rated Nonprofit award was based on the large number of positive reviews that The FPIES Foundation received – […]
It’s been a month since we celebrated Global FPIES Day and we’d like to take a look back at all we shared and accomplished together. Tools that Build Bridges This year’s theme was “Tools that Build Bridges” and we were able to provide some amazing new tools to help families […]
More Insights from the Global Patient Registry by Hilary Lagerwey Last year we shared some statistics gleaned from the data provided by FPIES families across the globe. The Global Patient Registry is a platform to collect information such as medical history, family history, and specific symptoms. The purpose behind this data repository is […]