NON PROFIT TO SUPPORT PEDIATRIC PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI, OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati, OH, is announcing the launch of their new interactive web site on Monday, August 27, 2012, to celebrate the organization’s one-year anniversary. The organization’s executive board identified a dire need for additional support resources and has significantly increased the amount of patient education tools on the new site to improve educational and practical resources for families and medical professionals alike.
Food Protein Induced Enterocolitis Syndrome is a rare, non-IgE mediated food allergy of the gut afflicting infants and children. A delayed reaction occurs (~2hrs or more) after ingesting the culprit food. Classic symptoms include profound vomiting, diarrhea, and dehydration. Symptoms can quickly lead to lethargy and in severe cases, septic-like shock. Little is known about this rare disease and currently no known causes, cures, standardized tests or treatment plans exist for FPIES patients. The FPIES Foundation was formed in August 2011 to provide support for families and medical professionals navigating this rare disease. The FPIES Foundation’s new web site will offer an expanded toolbox, a physician locator, an expansive glossary, and many more multimedia resources.
The FPIES Foundation is comprised of an executive board and a medical advisory board, with board members located in communities nationwide. The Foundation’s goal is to collaborate with families, medical professionals, and partnering organizations across the globe to improve the lives of FPIES children, present and future. “We provide a network of caring– the support you need to support your child” – Joy Meyer, founding member and Chair.
This post was written by the Executive Board of The FPIES Foundation