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Our Blog -A Network of Caring

Helping families

5 Unexpected Ways to Help School Children Living With FPIES

Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow Read more…

By thefpiesfoundation, 6 yearsFebruary 2, 2020 ago
Helping families

A Peek Into ‘FPIES – The Mystery that Made My Brother Sick’, a Children’s Book

We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES  – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living Read more…

By thefpiesfoundation, 6 yearsJanuary 19, 2020 ago
In The News

Our Top 10 FPIES Medical Literature Articles from 2019

We, at The FPIES Foundation, love to follow the research!  These are our top 10 picks for FPIES articles of 2019 (in no particular order).  Each of these articles brings some new data or novel idea to the ‘table’.  We Read more…

By thefpiesfoundation, 6 yearsDecember 27, 2019 ago
Living with FPIES

Allergy Hospitality

Because we like to bring our community resources that may be helpful to them for the everyday, we sat down with Margaret Schmitt who is the creator/writer of “Allergy Hospitality”, an allergen friendly cookbook.   This cookbook isn’t just for those Read more…

By thefpiesfoundation, 6 yearsNovember 27, 2019 ago
Helping families

FPIES Workbook for Parents and Caregivers: An Interview

This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!

By thefpiesfoundation, 6 yearsSeptember 12, 2019 ago
Inspirational stories

Rare in How We Care

Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, Read more…

By thefpiesfoundation, 7 yearsMarch 27, 2019 ago
Helping families

An interview with Amanda’s Own Confections

We love and appreciate the allergy friendly companies that provide foods to help expand our children’s diet.  Today we would like to share a little about one of those companies, Amanda’s Own Confections.  As always, be sure to contact the Read more…

By thefpiesfoundation, 7 yearsMarch 9, 2019 ago
Helping families

Make Like A Zebra and #ShowYourStripes

Make Like A Zebra and #ShowYourStripes Every year, my daughters and I look forward to Rare Diseases Day. It is such a great opportunity to raise awareness, but I feel like it also is a wonderful reminder to them that Read more…

By thefpiesfoundation, 7 yearsFebruary 26, 2019 ago
FPIES Registry

Better Together: Connecting Families and Doctors to Understand FPIES

This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry

By thefpiesfoundation, 7 yearsFebruary 7, 2019 ago
Helping families

FPIES: This is How We Do It

As we celebrate our seventh anniversary at The FPIES Foundation, I have been looking back over the years since our beginnings and since the start of my own family’s FPIES journey. I smile as I remember families that have come Read more…

By thefpiesfoundation, 7 yearsSeptember 3, 2018 ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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