Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow tenfold when it comes to prepping meals for children with Read more…
We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son. Read more…
We, at The FPIES Foundation, love to follow the research! These are our top 10 picks for FPIES articles of 2019 (in no particular order). Each of these articles brings some new data or novel idea to the ‘table’. We are so thankful to all of the practitioners and researchers Read more…
Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…
This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry
As we celebrate our seventh anniversary at The FPIES Foundation, I have been looking back over the years since our beginnings and since the start of my own family’s FPIES journey. I smile as I remember families that have come and gone from our community. Even though they may have Read more…
Emergency bread. This may sound like a bizarre concept to families without allergies, and possibly even to those with. The first time I used the term, my husband* looked at me like I was crazy. “What’s emergency bread?” I explained what I meant by it, but it didn’t really Read more…
We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether Read more…
Halloween is one of my favorite days of the year. I love holidays in general, and even though Christmas will always have a special place in my heart, there are some pretty big expectations wrapped up (pun intended) around December 25. Big extended-family get-togethers, possibly involving travel, a fancy dinner Read more…
A diagnosis of FPIES can be life-altering. So, when The Mighty asked our community for some of the things parents of children living with FPIES are doing, because of the diagnosis, that other people may not realize, the response was incredible. With over 150 million readers and thousands of contributors, Read more…