The FPIES Foundation invites everyone to participate in the first official celebration year of Global FPIES Day on October 14th! FPIES (Food Protein-Induced Enterocolitis Syndrome) is a rare type of food allergy and the need for awareness, education and support Read more…
Global FPIES Day is fast approaching, set for October 14th, 2014. We are so excited for this huge awareness raising opportunity and we are also so excited that so many FPIES Families are getting involved! There are quite a few Read more…
The FPIES Foundation is excited to celebrate its third anniversary of empowering, educating and helping families around the world to navigate life with Food Protein-Induced Enterocolitis Syndrome (FPIES). This past year was packed with numerous accomplishments, big and small. The Read more…
FPIES is a rare diagnosis that is often not fully understood, which can make it challenging for parents and medical providers. The FPIES Foundation partnered with ThriveRx to present “Advocating for your child in the Healthcare system“. The purpose of Read more…
The FPIES Global Patient Registry Getting to Know CONNECT Part 3 of 3 in Registry Series What defines the CONNECT program? Patient Crossroads’ CONNECT program is, “a registry platform, which allows patients around the world to join others in reporting their Read more…
The FPIES Global Registry Getting to Know the Patient Registry Part 2 of 3 in Registry Series What is a Patient Registry? Also referred to as a “disease registry” or “clinical registry,” a Patient Registry is a program that collects and stores data Read more…
The FPIES Global Patient Registry An Introduction and Overview Part 1 of 3 in a Registry Series In November 2013, we at The FPIES Foundation presented the first-of-its-kind FPIES Global Patient Registry, via the Patient Crossroads CONNECT program. Some Key Terms: Patient Read more…
My daughter Nicole was diagnosed with FPIES when she was 4 years old. She had struggled with chronic issues since 18mths of age and we were more than thankful to have a diagnosis. Nicole has several safe foods, including Chicken, Read more…
This post is to honor fathers of children living with FPIES by sharing these stories of the journey of their families. Sharing both trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable Read more…
May is National Asthma and Allergy Awareness month! In 1998, the Food Allergy & Anaphylaxis Network, now Food Allergy Research and Education Foundation (FARE), created Food Allergy Awareness Week (FAAW) to educate others about food allergies, a potentially life-threatening medical condition. Read more…